Sleep the thing I think of all the time I'm awake. I could honestly win a gold medal in the sleep Olympics. Now of course I go to bed early and tiredness is one of the symptoms of MG but I still can't cope with the endless need to sleep. I get up at 6.30 am because it takes me 2 hours just to get washed , dressed and to feel mildly human. I take my meds as soon as I get up and after I've taken them I'm so full I don't need to eat breakfast. I take 13 every morning so I'm so full after them I don't need my Weetabix to keep going. Even if I was hungry I can't eat first thing in the morning so I have a glass of milk to keep my bones strong just like the doctors always tell you to. Aren't I a good girl? But no matter how I try I need to nap throughout the day to keep going. I fall asleep in the car, watching TV, when crafting in fact I'm fully expecting to fall asleep whilst I'm eating and I'll wake up smothered in food. Yuck! I go to bed between 10 and 11 so I'm not exactly a night owl.
I've tried to stay awake. I've pinged elastic bands on my wrists ,had 20 min naps, splashed cold water on my face, gone for a short walk to the front door and back etc. Does anyone have any ideas? All will be tried and reported on.
As I've said one of the main symptoms of MG is exhaustion. How do people hold down a job when they feel this way? I've nodded off twice so far as I'm writing this. I'm sure I will do it at least once more before I finish. Sleeping beauty has nothing on me! I would love to know what to do zzzzzzzzzzzzzzz OOPS ANOTHER NAP. Right I give up I'm off to bed for a proper sleep.
See you later sweeties xxx
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